完成研究
学习MPSVI CSP
粘多糖病(MPS) VI临床监测项目(CSP)
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指示
粘多糖病VI (MPS VI, Maroteaux-Lamy综合征)
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临床实验的治疗
Naglazyme® (galsulfase)
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Study Type
Phase 4
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Goal
The objectives of this program are: to further characterize the natural progression of MPS VI disease; to generate and disseminate information on the care and management of MPS VI patients to clinical and medical professionals; to provide a resource to physicians and patients by providing information for optimizing patient care based on aggregate data; to characterize the clinical response to long-term Naglazyme® (galsulfase) treatment; to further characterize the long-term safety of Naglazyme® treatment.
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Status
本研究已经完成